I found this article to be incredibly moving, sad and beautiful. How lucky we are to enjoy the present and the hope of a future.
Notes From a Dragon Mom
Alexandra Huddleston for The New York Times
Emily Rapp and her son, Ronan, who has Tay-Sachs disease.
By EMILY RAPP
Published: October 15, 2011
How do you parent without a future, knowing that you will lose your child, bit by bit?
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